Building Knowledge, Accelerating Research and Improving Care

Global Prader-Willi Syndrome Registry


For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the Prader-Willi (PWS) community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your Prader-Willi (PWS) research?